“I just want to stand up and kick a soccer ball, but that will never happen now.”
BuzzFeed first talked to Shane Burcaw and his girlfriend Anna Reinalda back in February. Now, he has released a short documentary film, A Will To Survive , about his life with muscular dystrophy.
The 22-year-old Pennsylvanian walks you through what it's like living with the disease and the challenges he faces everyday. Shane is not able to do everything normal people can do. However, Shane's determination to keep living positively is very uplifting!
...There are many different kinds of muscular dystrophy. Symptoms of the most common variety begin in childhood, primarily in boys. Other types don't surface until adulthood. Some people who have muscular dystrophy will eventually lose the ability to walk. Some may have trouble breathing or swallowing. There is no cure for muscular dystrophy. But medications and therapy can help manage symptoms and slow the course of the disease."
Shane tries to remain positive and spread awareness by documenting his life through his Tumblr page, Laughing at My Nightmare . And now in video form with his short film, BuzzFeed asked Shane how the project came together...
"This video was inspired by a piece I wrote a few years ago shortly after a pretty bad hospital stay. The video recounts the terrifying process of being admitted to the hospital and thinking I was on my way towards death back when I was 17 years old. Obviously, I didn’t die! I attribute my survival through that illness to the positive mindset I had throughout, and also, ya know, like, doctors and medicine and stuff," Burcaw said.
Via vimeo.com
His hope is to shed light on his battle and help others with MD. To do that, he started his own non-profit, No More Nightmares. He hopes to raise $40,000 this year to be able to sponsor others with "vital equipment they need to live awesome lives."
His non-profit is already working! This is 15-year-old Shelby from Pennsylvania (pictured above). She has congenital muscular dystrophy, and applied for a grant for a specialized bed. Shelby recently lost her ability to adjust herself in bed, so Shane's non-profit found a bed that can help her. According to Shane, she has now regained her independence and comfort.
Via indiegogo.com
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